It has been almost a year since our last blog post. Who would have thought our world would change so much in that time? A lot has changed in Cliff’s cancer journey as well. As many of you know, at last post we were anxiously waiting for the clinical trial to take place. During that time, we felt strongly that we should sell our home in Fruit Heights. With our kids married, our house was more than we needed. We found a place in Layton in a 55 and older community that felt like the perfect fit. We put money down and began the process of building. No sooner had we started down the building road that Utah had an earthquake, Covid hit, and because of Cliff’s cancer we were pretty much in lock down. To put salt on the wound, the clinical trial was put on hold.
In May, we put our house up for sale and sold it two weeks later. We moved out the middle of June and moved in with Cliff’s mom, who has been so good to us while we have been here. She has shared her love of movies with us while we have taught her how to play a few card games.
In July, Cliff was offered the clinical trial again. Because of Covid, they would not let me be in the hospital with him. We were both uncomfortable with that and declined participation until they could lift those restrictions.
In September, we received another call asking if we could come in December. This time they agreed to let me be in the hospital with him. We were thrilled and ready to take the next steps to prepare for the trial.
The hospital covers the trial itself but they ask your insurance to cover charges that are typically covered such as CT scans, labs, etc. Our insurance denied coverage because the charges were attached to a clinical trial. We sent an appeal specifying that these were services that they routinely pay for and that if they didn’t cover them, then Cliff would have to go back on chemo and they would be covering them anyway. Unfortunately, it was denied again.
As always, we had many earthly angels in the form of family and friends step up to the plate to offer help and to even set up a Go Fund Me. This was going to be a substantial financial undertaking and we felt that we needed to consult with Cliff’s oncologist. He shared with us that results were not as promising as he had hoped and that he would be hesitant to recommend the trial when paying for it with no insurance participation.
It has taken us a couple of days to process our disappointment but we are looking ahead and are ready to continue the fight. I am always amazed at the sheer determination that Cliff displays with this cancer journey. He is brave, positive, faithful and full of hope. It is one of the things I love about him. We will continue to look for trials as it is the only way to find a cure and we need to find one. Not only for Cliff, but for all.
As many of you know, our family motto is “Newtons Never Fight Alone”. This motto could not be more true as evident with the many phone calls, prayers, words of encouragement, and postcards sent to us the last few months. We want to express our love and gratitude to our family and friends. We consider you our greatest treasures. Happy Holidays! May you find joy and peace in the new year.
We are so so sorry. We love you both and will continue to keep you in our prayers🙏
ReplyDeleteI am so sorry this has all been so challenging and yet so uplifted by the many many miracles and blessings you have also testified of. I am inspired by your love for each other, your determination, and your faith. Love and miss you both and we will continue to pray for you! ❤️
ReplyDeleteYour always in my Prayers I hope everything works out.
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